Author Archives: nkf _advocacy

About nkf _advocacy

The National Kidney Foundation's advocacy movement is for all people affected by CKD, transplant candidates and recipients, living and potential donors, donor families and caregivers. We empower, educate and encourage you to get involved on issues relating to CKD, donation and transplantation.

Inspiring Our Youth To Be Advocates!

Earlier this summer, while speaking with one of our Kidney Advocacy Committee members, Robin Kahn mentioned that she had brought advocacy education into her classroom.  She taught a unit on advocacy and asked one of her Congresswoman’s staff to visit … Continue reading

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Success! New Kidney Disease Funding

By Troy Zimmerman, Vice President of Government Relations Each year, the National Kidney Foundation, our allies, and our supporters advocate for increased funding for kidney disease research and programs in Congress.  We are proud to tell you that the work … Continue reading

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Patients Engage in FDA Meeting to Spur Drug Development in Transplantation

By: Kelli Collins, VP Patient Engagement and Tonya Saffer, VP Health Policy On September 27th and 28th the National Kidney Foundation Kidney Advocacy Committee Members participated in the Food and Drug Administration (FDA) meeting, “Evidence-Based Treatment Decisions in Transplantation: The … Continue reading

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Job Security for Living Organ Donation Guaranteed Under FMLA!

By Kevin Longino, CEO of the National Kidney Foundation and kidney transplant recipient I am delighted to share wonderful news with the kidney disease community. On August 28th, the U.S. Department of Labor issued an opinion letter on living organ … Continue reading

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Three weeks to speak to your legislators

By Andrew Fullerton, National Kidney Foundation Throughout the year, many of our readers have been invaluable advocates by writing, tweeting and calling your legislators in support of the Living Donor Protection Act; H.R. 3867, legislation to promote the early detection … Continue reading

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A Patient Perspective on Bayer Pharmaceutical’s First Clinical Trial Patient Retention Summit

By Cari Maxwell, Kidney Advocacy Committee member It was my privilege to be a guest speaker at Bayer Pharmaceuticals’ first Clinical Trial Patient Retention Summit in June 2018 near their headquarters in New Jersey. Bayer is constantly engaged in new … Continue reading

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Volunteering With The Local NKF Office On A Walk

By Curtis Warfield, Kidney Advocacy Committee member and transplant recipient The National Kidney Foundation’s Kidney Walk is an important event in every community that is fortunate to host one.  Not only does it raise funds for research programs; it also … Continue reading

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NKF Peers: Successful Model of Patient Engagement

By, Kelli Collins, MSW Vice President, Patient Engagement, National Kidney Foundation The National Kidney Foundation was invited to Institute for Patient and Family Centered Care (IPFCC) 8th Annual International Conference to present on its signature Peer Mentoring program. We were … Continue reading

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Reflections on my Experience at the Building Research Capacity in the Dialysis Community at the Local Level Workshop

By David White, Kidney Advocacy Committee member The “Building Research Capacity in the Dialysis Community at the Local Level” workshop was the first of its kind to focus exclusively on improving the research capacity of dialysis clinics. The workshop, funded … Continue reading

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Congressional Action to Support Living Organ Donation in the Family and Medical Leave Act

Today, we announce a significant win with the removal of a barrier to living organ donation! The National Kidney Foundation worked closely with Rep. Jaime Herrera Beutler (R-WA) to develop language to protect living donors’ jobs that will be included in … Continue reading

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