Kidney Action Committee is off to a Busy Start! (July Update)

By Troy Zimmerman, Vice President, Government Relations, NKF

The members of NKF’s Kidney Action Committee (KAC) were eager to roll up their sleeves and get going in their new roles. First up, our liaisons were asked to draft letters to the editors of their local papers to raise awareness about the need for increased research funding for kidney disease.  Our goal was to highlight the importance of investing in research and programs to improve early detection of kidney disease, slow progression and improve access to kidney transplantation.  This is a cost-effective strategy with the power to save lives, kidneys and money.

Important work is being done at the Centers for Disease Control and Prevention (CDC) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to advance kidney disease research.  But federal funding for this research must be appropriated by Congress. Therefore, KAC liaisons included an important message in their letters asking representatives to expand federal research.

As a result of their efforts, letters from KAC liaisons were published in publications around the country, including Arizona, North Dakota, Georgia, Virginia, Colorado and Louisiana. The House and Senate Appropriations Committees have now completed their respective work on Fiscal Year 2016 funding for the Department of Health and Human Services (HHS), and NKF is pleased to report that our advocacy efforts have thus far seen some success.  For 2016, both congressional committees recommend $2.1 million for the CDC kidney program, identical to this year’s funding.  For NIDDK, the Senate recommends an increase of $76 million and the House an increase of almost $22 million, compared to the present funding level.  Further action on these bills is expected this fall, but we are off to a promising start!

Great job to everyone who participated in media outreach!

What’s next for the Kidney Action Committee?

In August, Members of Congress will report to their district offices for recess, and KAC patient liaisons will meet with their Members to promote early detection and management of kidney disease.  Early detection not only saves lives, but substantially reduces spending as kidney disease often goes undiagnosed or is diagnosed too late.

District meetings allow for more time with Members of Congress to discuss the issues important to their constituents.  They are a great time for constituents to talk about their personal connection to kidney disease and invite Members to attend or participate in local NKF events.

You don’t have to be a KAC member to schedule a meeting with your Members of Congress.  If you are interested, contact nkfadvocacy@kidney.org for scheduling tips and talking points.

IMG_1099

About nkf _advocacy

The National Kidney Foundation's advocacy movement is for all people affected by CKD, transplant candidates and recipients, living and potential donors, donor families and caregivers. We empower, educate and encourage you to get involved on issues relating to CKD, donation and transplantation.
This entry was posted in Uncategorized. Bookmark the permalink.

12 Responses to Kidney Action Committee is off to a Busy Start! (July Update)

  1. Pingback: Kidney Action Committee is off to a Busy Start! (July Update) | kidneystoriesblog

  2. Michael Ward says:

    I’m looking for someone that could help me with my kidney disease how I can get on this list for donations of kidney failure

  3. Julie says:

    Hi! My boyfriend is also in need of at least one kidney transplant a.s.a.p. Thank you! Julie

  4. Ok, can someone tell me why the NKF recognizes that undiagnosed goes on and on. Why is that? While humans suffer the consequences of inaction.

  5. Donald H. DiLoreto says:

    I am in the early stage of Kidney disease. Procrit has been recommended. Your assessment of the drug please.
    Don
    8/14/15 10:05

    • Lee Perkins says:

      I was told an eGFR of more than 60 is normal functioning kidney reading, I have heard different. Any help, and thanks On Aug 14, 2015 7:19 AM, “Advocacy in Action” wrote:

      > Donald H. DiLoreto commented: “I am in the early stage of Kidney disease. > Procrit has been recommended. Your assessment of the drug please. Don > 8/14/15 10:05”

    • Lee Perkins says:

      What is early stage. 1,2? On Aug 14, 2015 7:19 AM, “Advocacy in Action” wrote:

      > Donald H. DiLoreto commented: “I am in the early stage of Kidney disease. > Procrit has been recommended. Your assessment of the drug please. Don > 8/14/15 10:05”

  6. Donald H. DiLoreto says:

    I was told it is stage 1.

  7. Pingback: NKF’s 2015 Year In Review: Advocacy Achievements | Advocacy in Action

Your thoughts:

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s