Third Annual NKF Home Dialysis Therapy “Fly-In” to Capitol Hill A Great Success

On September 13-14, 2011, patient advocates from across the U.S. participated in the National Kidney Foundation’s annual fly-in to Capitol Hill.  Advocates from six states: Arkansas, Florida, Louisiana, Maine, Missouri, Wisconsin, as well as staff members from NKF’s National Office, National Capital Area Division, Ohio Division and Carolina Division, visited 27 congressional offices to discuss newly introduced legislation supporting immunosuppressant drug coverage (S. 1454 and H.R. 2969) and today’s challenges facing chronic kidney disease patients.

Advocates shared compelling personal stories with congressional health staff about their struggles managing the effects of chronic kidney disease as well as to afford the costs associated with transplantation.  All of the patient advocates either are or were on home dialysis therapy and discussed how this treatment option was a better fit for their lifestyles, including allowing them to continue working full-time and travel.  The patient advocates were also among over 100 attendees at a Congressional Kidney Caucus briefing, “Dialysis 101,” at which one of our Florida advocates, Doug Curtis, spoke passionately about the challenges he faced overcoming chronic kidney disease.  Doug, who received a kidney transplant earlier this year, also talked of how Peritoneal Dialysis enabled him to continue full time in his job that requires frequent travel.

About nkf _advocacy

The National Kidney Foundation's advocacy movement is for all people affected by CKD, transplant candidates and recipients, living and potential donors, donor families and caregivers. We empower, educate and encourage you to get involved on issues relating to CKD, donation and transplantation.
This entry was posted in Uncategorized. Bookmark the permalink.

Your thoughts:

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s